I can't believe my last post was back in the summer!
A lot has changed since then. I had to move back with my parents, give up my job and my health got worse!
But all is now settling down. It's a bit of a wake up call to be living back with my parents but is going ok and they certainly have been very good about having me back, after all I've lived away from home practically since I went to university 10 years ago!
I couldn't afford to stay in London and my health was so unpredictable that if I had to take any time off work, then I couldn't afford my rent! As it happens I have to have lots of tests in the next few months and am going into Stanmore (Royal National Orthopedic Hospital) for Rehabilitation for my Ehlers Danlos syndrome for 3 weeks at the end of April, so life is going to be quite chaotic.
Giving up my job was the biggest decision as I had to give up my independence, freedom and the feeling that I was earning my own money and moving up in my life. I thought about it for a few months and knew it was going to be inevitable. My work have been so supportive, but things got really busy and overwhelming and they just couldn't do anything about it and so I chose to leave before it got worse. It was definitely the right decision as lots of opportunities are coming my way and I really need some down time to look after my body.
I had another big decision and that was to buy a wheelchair because my standing tolerance was becoming less and still is bad. It makes shopping and going out very hard and I don't want to give up those pleasures in life, so I decided to invest and it has been worth its weight in gold so far. I hate having to rely on it at times but really do force myself to get active when I can and still go swimming and walking when I am having a good day.
I hope you are all ok and now that I am not tied down to work I have a lot more time to invest in getting the POTS Pals UK group moving along. The first meet up is planned and I am currently working on the January newsletter right now.
Thanks for all of your pateien